Tomorrow is big day, have a Bone Marrow Biopsy to decide if all this misery is working. Please asking for lots of extra prayers that BMB shows complete remission. Today was a big one, started out with shaving of my head, very traumatic but ready it was falling out everywhere. Jim and Kim went out and found me a wig and if you didn't know you wouldn't know it was not my own. I cut it some and amazing no one knows hair is gone. It is very cold with nothing on my head. Thank God everyday for Kim she is the best and we are so happy that she makes Jeremy just as happy.
Heard from Bone Marrow Coordinator and match is coming along very nicely and date will be around the 8th of June. Pray again for all to go well with this process.
This whole process has changed my entire look on life, If I come out of this, there will not be a moment I do not thank God for the simplest of things, breathing, watching flowers grow, telling my family I love them, any number of things, just be grateful for the best of everything.
I continue to have a temperature, and they cannot figure out why, they are staying of top of the infections but have yet to identify the source of the infection. I think they just don't understand the Arvin's Normal High Fevers. Once again they did not ask me and don't need another opinion. Should have the results of BMB by Thurs. Jim's Birthday. he said it would be best present ever, I agree.
Good Night all and hope tomorrow brings on better waters.
Linda
Like I said Linda, your hair is nothing. It tells me nothing about YOU. Your eyes tell me everything--they are beautiful,just like you! I'm praying for the BMB to show complete & total remission. Coming home from class tonight was a great opportunity to just pray for YOU and that's what I did. I hate is so bad that I'm missing these (3) benefit meetings they are having on Monday nights but this class wasn't suppose to materialize, and it did. Next Mon is my last night so I will be attending the meetings once again. Everything that I've told them before about the food is a definite "GO". If they don't know it by now, they should. What a blessing this was and it makes me more determined to "pay things forward" like we're suppose to treat each other. I see where Mosby is coming to see you. Hopefully Matty will get there too and the boys. Can you have visitors yet or do you "want" them even....be honest with me please! This is such a helpless feeling for me.....you over there and me here, yet I know you are so embedded in my being that it's unimaginable. Sometimes I feel so nauseated that it's as if I'm seeing you sick to your stomach....feeling you, yet cannot reach out to help you. I'm so sorry I can't help you.
ReplyDeleteRemember we are celebrating our 40th anniversary together!!
I love you and I miss you.
BFF, Carol